Sharing information

Sharing information

The Bill gives Scottish Ministers powers to set up a statutory scheme to enable sharing of care records between the National Care Service and the NHS to support “the efficient and effective provision of services”. In setting up this scheme, the intention is “to ensure professionals get timely and accurate information to enable them to safeguard people at risk of harm and provide the highest levels of care” and to “empower people around their own care and data”, while also addressing concerns “around service users having to tell their story to multiple providers” which the Scottish Government argues “is not only frustrating, but can be traumatic”. The Bill also gives Scottish Ministers the power to set data and digital information standards which “will set out how certain information is to be processed and will be made publicly available”. The Scottish Government argues that setting out standards in this way “will allow technical detail to be included and to be updated more flexibly as required compared to setting the standards themselves in legislation”. The Scottish Government also argues that setting information standards “is important to improve equality for service users, and also to improve the quality of data used for secondary purposes such as national and regional oversight, planning, commissioning and procurement, regulation, research and national reporting”. If you agree with these proposals in the National Care Service Bill click the thumbs up button (👍) below. If you disagree with these proposals click the thumbs down button (👎) below. If you are unsure about the proposals and feel you need to know more about them click the question mark button (❓) below. If you have any additional comments about these proposals please provide them in the comment section below.

Points

Entirely sensible.

Agree this is sensible as is absolutely shocking at the moment, with carers having to re-tell the same story multiple times, with massive inefficiencies. But it also requires significant upgrade in the security of systems that hold personal data.

From one unpaid carer to another, could not agree more. We were allocated short break fund for respite and cannot find any place in area to take my daughter. No medical care, no beds, no staff, is answer I get when I phone around and as our local authority is not a provider only a facilitator we are at an impasse.

Totally agree that as long as it can be made super secure, this is the sensible way to go since for many of us I imagine that Tesco may well have more data on our lives than the NHS does! As an unpaid Carer, I too am fed up have to tell and re-tell my story from one NHS facility to another.

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