Energy costs for families with a terminally ill child

Energy costs for families with a terminally ill child

The families of children living with a life-shortening condition continue to face unavoidably high energy costs. This is due to a combination of factors: running life-saving equipment 24/7 at home, such as ventilators and suction machines; maintaining higher room temperatures for a child who cannot regulate their body temperature; and extra washing and drying due to continence issues. Many families tell us their bills are double that of the average household - and yet these families are 50% more likely to be living in the most deprived parts of Scotland compared with the least deprived. At a time where the families we support should be making happy memories together, they are living with fear and worry. What commitment can the Cabinet Secretary make to provide more targeted support?


Back to group

This content is created by the open source Your Priorities citizen engagement platform designed by the non profit Citizens Foundation

Your Priorities on GitHub

Check out the Citizens Foundation website for more information